How Involved Should A Parent With Dementia Be In Making Caregiving Decisions?

It’s difficult to coordinate care for a parent with dementia and it’s even harder when there are many caring siblings with different points of view of how to accomplish the end goal of keeping a parent safe and content. One way to accomplish this to divide up the many responsibilities of caregiving tasks according to each sibling’s availability and experience so that each piece runs smoothly.

It’s a good idea to Include the parent with dementia in making important decisions to the extent that it is possible. Begin with a conversation about hiring companion care by expressing your concern their safety and your own fear that you and your siblings might not be available at the moment she most needs help. If you have caught her at a moment of lucidity, you’ll know that she understood or that she was informed. Should she resist the help at a later point, you can comfortably remind her that this is something you discussed with her.

In the meantime, getting the needed help is a priority and you should and you should not delay if the help is needed. To help her adjust to the presence of helpers in her home one sibling (or more) should be with her as well for the first few days.

It’s also important to understand where a parent is on the spectrum of the disease. It will help to understand the challenges you can expect in the future as well as help to plan for her future needs, both financially and logistically.

It’s always a great idea to learn about resources in your own community that can help with daily care and activities for dementia patients. Visit adult day care programs, other supervised senior centers with a parent so that when need or desire arises you’re prepared. It will make everything easier. Finally learn about programs that can offer support to you and your family.